Category: tremors

Triumph Over Tremors

Do you currently experience worrisome tremors? If so, I invite you to watch my short video below and listen to my 30 minutes interview with Bobby Krause, founder of Be Still Foundation, on his triumph over tremors.

Bobby Krause discusses how Focused Ultrasound changed his life below:

www.bestill.foundation

Below is Bobby’s story

As a college athlete turned sales executive and father of two, I loved to live large and make the most of every moment. This was until a “nervous tick” began to occur in my left arm. After a series of doctor’s appointments, MRI’s and a pivotal appointment with a neurologist in 2016, my and my family’s lives were forever altered when I was diagnosed with young onset Parkinson’s Disease at the age of 42.

After my diagnosis, the harmless tick evolved into a relentless, debilitating tremor throughout the left side of my body. These tremors caused constant pain, embarrassment and a significant decline in my quality of life. I struggled to focus on life happening around me. I could not conduct business meetings without distraction. The tremors escalated greatly under the pressure of intense situations like coaching my son’s basketball games. I wondered how life could go on this way.

My Triumph Over Tremors

In 2020, a glimmer of hope emerged when I learned of clinical trials underway for a groundbreaking tremor treatment, called Focused Ultrasound. Thanks to an incredibly generous employer, along with an exceptional medical team at the University of Penn, my life-changing therapy was scheduled for June of 2022.

June 9, 2022, is a day I will never forget. While traveling to the University of Penn for my Focused Ultrasound therapy, I was full of hope, yet I could see my tremors intensify and feel my muscles tighten from the stress of it all. Little did I know, the profound physical and emotional impact the next two hours in the MRI tube would have on my life.

Laying fully conscious on the MRI table was surreal and incomprehensible. In real time, I communicated with the medical staff how and what I was feeling during the five sonication’s I underwent that day. While inside the tube during the third sonication, for the first time in nearly a decade, my body surrendered the tremors, my muscles eased, and the rigid tension melted away and I was finally able to…Be Still!

I’ve had the distinct honor of sharing my journey with Parkinson’s Disease and my Focused Ultrasound therapy experience at prestigious venues like Capitol Hill, Princeton University and within communities such as Rock Steady Boxing. Through these interactions, I’ve witnessed firsthand the hope my story instills. However, this optimism is tempered by the lack of awareness, availability and financial hurdles many face in accessing this treatment. These exchanges with those full of hope but greatly in need, are what sparked the start of Be Still Foundation.

Below are listed the questions I ask him during the interview as he discusses his triumph over tremors.

    1. Tell me about yourself Pre-Parkinson
    2. When were you officially diagnosed with Parkinson’s and what were your symptoms?
    3. How did you initially treat your symptoms and what were the pros and cons of those treatments?
    4. How and when did you become aware of Focused Ultrasound?
    5. Once you learned about focused ultrasound what were your next steps with your family and medical team?
    6. Can you take me through the day of your scheduled treatment?
    7. What side effects did you experience from the procedure?
    8. I understand it’s now been two years since your procedure, are you experiencing tremors again?
    9. What led you to create the Be Still Foundation?
    10. For those interested how can they support the Be Still Foundation?

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery
Road to Recovery from Parkinsons disease

Ketones as Therapy for Parkinson’s

Bill Curtis developed Parkinson’s symptoms at the age of 45 in the year 2000. He  discusses his experience with using ketones and other therapies.

Ketone Ester available at: https://www.ketoneaid.com/pr

Have questions? Email Frank at: frank@ketonaid.com

 

Parkinson’s Regeneration Training

Karl Sterling is a neuro-rehabilitation specialist and NASM Master Trainer based in Syracuse, New York, and is the creator of the Parkinson’s Regeneration Training ® and NeuroMotor Training ® education programs.

While his extensive experience as a rehabilitation specialist includes working with a variety of populations, he primarily specializes in working with clients who have movement disorders such as Parkinson’s disease, MSA (Multiple System Atrophy), MS, Charcot-Marie-Tooth, Alzheimer’s, Epilepsy, Autism, and more.

Karl travels extensively around the world as public speaker, keynote speaker, and educator in the movement disorder, human movement, and personal growth arenas. He is the Chief Operating Officer of Agile Human Performance, Inc. and owner/CEO of NeuroMotor Training LLC, which currently offer courses worldwide.

In his second book, “Parkinson’s Empowerment Training” author Karl Sterling goes deep into exploring many areas that will help the person with PD to manage symptoms and improve quality of movement, cognition, memory, and life. Topics include:

  • the power of hope, empowerment, and belief
  • how to maximize neuroplasticity
  • sleep management
  • benefits of using Power Plate and whole body vibration
  • learn about the many roles of dopamine
  • improve memory and cognition
  • “Nutrition in Parkinson’s Disease” written by dietitian, Cynthia Lopez

www.karlsterling.com

Lessons Learned from Hiking the Appalachian Trail

Questions Mountain Sage Addressed:

* Is Recovery Primarily mental or does “getting out of your mind” help?

* How does “You do not think till you pull the trigger” apply to recovery?

* Why are people who experience Parkinson’s symptoms always so active?

* How do you react in public when tremors flare?

*  Is sleep important?

* How to you get into the deep sleep that promotes recovery?

* How has V2VG (Vet to Vet Group) helped you out?

* Does helping others help you when you yourself need help?

John Coleman ND Talks About His Full Recovery from Parkinson’s

Who was the first person to succeed in reversing all symptoms of their Parkinson’s disease? We obviously cannot know for sure, but naturopath doctor John Coleman, ND, was one of the first – if not the first to reverse his own Parkinson’s symptoms during the mid 1990’s. What is the story behind John Coleman’s recovery? How in the world did he figure out how to heal his neurological symptoms when no one else had succeeded before him?  What therapies helped his recovery? Which ones did not? John answers these and other questions during this remarkable interview with him.

This interview with John Coleman ND was originally aired on Parkinsons Recovery Radio in 2010. You will be surprised at his revelations about what made the most difference to the success of his recovery in this interview. John is the author of Stop Parkin’ and Start Livin‘.

For more information about the Aquas visit https://www.aquas4life.com

For more information about Johns 12 step recovery program, visit: http://parkinsonsrecoveryprogram.com

Robert Rodgers PhD

Shifting the Parkinson’s Disease Mindset

Dr. Hageseth dates his first non-motor symptoms to 2004 when his sense of smell disappeared. In 2008 he developed severe constipation which he has had ever since. In 2011 he saw the emergence of a tremor in his right hand which progressed over the following year to involve his entire right side. It went on to include stooped posture, shuffling gait, and problems with balance. A neurologist confirmed his diagnosis in 2012. He tried three different medications over the next four months but discontinued each one due to side effects or lack of efficacy.

His neurologist gave him one piece of advice: EXERCISE, EXERCISE, EXERCISE.

A year later many of his symptoms had regressed. He attributed his improvement to the intensity of his exercise and taking up yoga. He established his first website: Sweating Out Parkinson’s Disease. He intended to encourage other PWPs to follow his example.

By 2014 he was doing so well that he had a DAT scan to confirm the diagnosis of PD. It was positive.

Over the last year and a half, he explored why more people aren’t doing better with PD. It was then that he started to examine how the mind may influence the course of PD. Exercise is the key to living a full life with PD, But if the mind does not believe the degree of improvement that exercise can achieve. Then improvement will only go so far.

Because of the problem of dyskinesia developing after five years on levodopa, he thinks newly diagnosed should pursue a program of great intensity and focus and manage their minds, so they realize they can live with PD and not require levodopa.Visit: www.shiftpdmind.com

Youtube Channel

Therapies for Parkinson’s Disease: Part I

This program consists of answers to questions listeners and members have asked me to address. Here is as short list of some of the questions and topics I address:

  • Using a nutritional approach to healing Parkinson’s I now have a healing crisis every 4 days followed by good days.What does this mean?
  • More about LDN for treating symptoms please.
  • What about Mannitol as a treatment for Parkinson’s symptoms?
  • How can I reduce tremors in my left hand and foot and in the upper, inner and left side of my head?
  • When will the 2017 updated Road to Recovery from Parkinsons Disease be available?
  • What about amino acid acid therapy as a therapy?

Robert

  • P.S. The second Jump Start to Recovery Course convenes August 1st for eight consecutive Tuesdays.

 

Parkinson’s Gave Me A Terrific Gift!

Fine Art Photographer Alan Babbitt was diagnosed with Parkinson’s in 2003 with a nasty hand tremor – just what a STILL photographer needs! After struggling to compensate for the shakiness, he had an epiphany. He realized he could use the tremor (and other movements) as an art technique – leading to a large body of work he calls “Un-Still Photography: The Art of Motion Within a Still.”

“But what really got shook up was me,” Babbitt continues. “Turning my tremor into something useful was an incredibly empowering game changer – boosting my confidence, mood and energy. It freed me up and allowed me to reach new levels of creative expression. But best of all, the fun and joy of photography came back. All thanks to that pesky Parkinson’s tremor! Is that weird or what? The damn disease has given me a terrific gift!”

See Alan’s Un-Still Photography at http://www.abproductions.com

History Tells Us Muscular-Skeletal Problems Cause Parkinsons

Since Noel Batten overcame several serious health issues himself as a teenager and then became qualified as a natural practitioner, he dedicated his life to helping others overcome what he calls muscular rigidity disorders such as Parkinsons disease and MS. His treatment is based on 3 findings documented by Dr. James Parkinson while treating patients and carrying out autopsies on Parkinson patients who passed away. These 3 facts can be found in Dr. Parkinsons book An Essay On The Shaking Palsy and how to get this historic book, along with Noels explanation on these 3 facts can be obtained from Noels website www.ParkinsonsDiseaseCure.com

Noel has been treating Parkinson and MS patients with his unique approach, since 2005 and he has numerous before and after success videos on his website, of patients he has treated, some who have walked away from wheelchairs in a matter of only days.

Noels message to people listening to this interview, is that if you have any symptom attributed to Parkinsons disease, for example: – stiffness, numbness or tremors, you will ultimately find that they are caused by some type of muscular-skeletal abnormality. Dr. James Parkinson explains in his book that the two most common abnormalities are problems at the C1 vertebra at the very base of the skull and spinal curvature.

Tension Release Exercises (TRE)

My guest today is Dr. David Berceli, PhD, creator of TRE® (Tension, Stress & Trauma Release Exercise) which is an innovative series of exercises that assist the body in releasing deep muscular patterns of stress, tension and trauma. TRE® safely activates a natural reflex mechanism of shaking or vibrating that releases muscular tension, calming down the nervous system. When this muscular shaking/vibrating mechanism is activated in a safe and controlled environment, the body is encouraged to return back to a state of balance.

Dr. Berceli has developed a marvelous Online TRE Webinar Course which offers a step by step explanation of  TRE® so you can get started right now with releasing trauma and reducing stress.

Dr. Berceli explains the potential therapeutic value of tremors in this Youtube video and is the author of Shake it Off Naturally.

This Youtube video is a testimonial of a man diagnosed with Essential Tremors who found TRE helpful.

For further information and to find a practitioner visit TRE®