Robert and I have recorded interviews three times in the past:
September 2016: Five years no medications. Parkinson’s improving. How I had gone for 5 years without meds and was doing well using exercise and yoga
January 2017: Wholistic (or holistic) how different PWPs approach their treatment.
October 2018: Shifting the Parkinson’s disease mindset.
This is my fourth appearance on the show today, and I still hold to my beliefs.
EXERCISE. EXERCISE, EXERCISE. I cannot exercise as hard as I did before. Gradually I had to walk more and jog less. Could only 3 – 4 miles.
More convinced than ever that MINDSET/ATTITUDE is the key, PARKINSON’S IS A CHALLENGE, NOT A CURSE.When I was formally diagnosed, I was 70 years old. Life expectancy for me was 84.1. Well, now I’m 82.4. In a year and a half, I will have reached my life expectancy.
YOGA remains critical.
WAIT UNTIL you really must take Levodopa. Levodopa induced dyskinesia (LID) is a real deal and can be disabling. Google it on YouTube.
Let’s look at my life since we last met, year by year.
2018 – I shot a video titled So High So Low for the “I HAD A DREAM PROJECT” where I hiked a three mile walk trail and climbed a thousand feet.
That year I also went to Uganda to demonstrate the practices I used to manage so long without meds. (Robert, this is quite a tale, plus I have pictures.)
2019 – After directing the local Parkinson’s support group, I resigned so new blood could take over.
BUT: New symptoms emerged that I didn’t know about:
Anomia: a language specific disturbance arising after brain damage whose main symptom is the inability of retrieving known words. But it’s not dementia!
Pseudo Bulbar Affect Crying or laughing excessively upon feeling any deep feeling.
Dysphagia: difficulty or discomfort in swallowing as a symptom of disease. It starts out with mucus as postnasal drip. Get to an OT!
Oily, flakey skin
Sleep disturbances. Fall into deep sleep in the middle of the day. And then don’t sleep well at night.
Pain in bed at night. Interfered with sleep.
2020 – It was a remarkable and horrific year. PANDEMIC!
No more yoga classes! No gym with weightlifting. Social interaction approached zero.
2021 – Then, a condition worse than Parkinson’s emerged: Major Depression.
March 2021 – Fell and shattered right knee – 16 days in hospital.
July 2021 – Fell and broke my right hip.
August – Severe depression, I became suicidal.
September – Chose to have a course of electro-convulsive therapy (ECT)
October- It worked, and my PD improved a lot.
The falls were due to the antidepressant I was taking may increase fall for people with Parkinsons.
LESSON: Make sure you MD goes through all meds in case a med might make falling more likely
My story with Depression
Family history is strong.
Parkinson’s did not cause my suicidal depression, genetics and environment did.Antidepressant medication failed to work and led to my falls!
2022 – I returned to my new normal. And that’s where I am today. I just have more symptoms and feel weaker.
I followed up with PWPs who I have advised in the past.
It became clear to me: I want to coach people with PD.
Martha Carlin brings us up to date on the latest Parkinson’s Microbiome findings and research and help connect the dots to our environment and increasingly processed and toxic food systems with idea on how to build a healthy microbiome to improve the symptoms of Parkinson’s. She will discuss environmental toxins, diet/nutrition, stress management and exercise as ways to impact the course of your disease and how to build your own health timeline to understand what may be impacting the course of your illness and how to change the trajectory.
This interview is with naturopath John Coleman who has just released his new book:Rethinking Parkinsons Disease which is to date, the most thorough exploration of the etiological pathways (causes) leading to diagnosis with Parkinson’s disease or similar neuro disorders.
Rethinking Parkinson’s Disease explains how and why trauma, toxins and stealth infections create symptoms diagnosed as a “disease”, usually treated without any further investigation into prodromal history, early life, toxic load or the possibility of infection.
The major section of this work details strategies to create wellness and reverse the illness processes, much available to patients with little or no cost. There are sections on Western Allopathic Medical treatments (symptom control), Complementary Medical treatments and therapies to avoid.
Fred Phillips is an author and former martial arts instructor. He was diagnosed with Parkinson’s disease in 2008. He is my guest on Parkinsons Recovery Radio to discuss his journey with this challenging health condition, his philosophy and approach to recovery, and his recovery protocol. Fred was originally a guest on Parkinsons Recovery Radio several years ago.
Fred blogs about his experience and can be found at: fredphillips.wordpress.com. He lives on Manitoulin Island in Ontario, Canada.
Here are the questions Fred answers.
1. For those who may not be familiar with your story could you provide an overview of your experience with Parkinson’s
2. What caused you to develop Parkinson’s?
3. What has happened since we last spoke?
4. Has your philosophy or approach changed
5. What has been your experience with medication?
6. What does your overall protocol and daily regimen look like?
7. What advice would you offer others experiencing Parkinson’s?
8. Have you published any new books since we last spoke?
Who was the first person to succeed in reversing all symptoms of their Parkinsons disease? We obviously cannot know for sure, but naturopath doctor John Coleman, ND, was one of the first – if not the first to reverse his own Parkinsons symptoms during the mid 1990s.
What is the story behind John Colemans recovery? How in the world did he figure out how to heal his neurological symptoms when no one else had succeeded before him? What therapies helped his recovery? Which ones did not? John answers these and other questions during this remarkable interview with him.
This interview with John Coleman ND was originally aired on Parkinsons Recovery Radio in 2010. You will be surprised at his revelations about what made the most difference to the success of his recovery in this interview.
Walter Mady discusses the importance of Physical Therapy for the Parkinson’s disease patient and the factors that have made the biggest difference in addressing his own Parkinson’s symptoms.
Walter Mady has been a Physical Therapist for 28 years in the private sector. Physical Therapists are healthcare specialists utilizing their knowledge of anatomy and physiology, therapeutic exercise, and ADL modifications when treating the Parkinson’s disease patient.
He specializes in manual therapy, orthopedic physical therapy, and is a specialist in exercise recreationally and therapeutically
Walter was diagnosed in 2008 with Parkinson’s Disease..
He discusses and stresses the importance of nutrition and exercise.
Dr. Hageseth dates his first non-motor symptoms to 2004 when his sense of smell disappeared. In 2008 he developed severe constipation which he has had ever since. In 2011 he saw the emergence of a tremor in his right hand which progressed over the following year to involve his entire right side. It went on to include stooped posture, shuffling gait, and problems with balance. A neurologist confirmed his diagnosis in 2012. He tried three different medications over the next four months but discontinued each one due to side effects or lack of efficacy.
His neurologist gave him one piece of advice: EXERCISE, EXERCISE, EXERCISE.
A year later many of his symptoms had regressed. He attributed his improvement to the intensity of his exercise and taking up yoga. He established his first website: Sweating Out Parkinsons Disease. He intended to encourage other PWPs to follow his example.
By 2014 he was doing so well that he had a DAT scan to confirm the diagnosis of PD. It was positive.
Over the last year and a half, he explored why more people are not doing better with PD. It was then that he started to examine how the mind may influence the course of PD. Exercise is the key to living a full life with PD, But if the mind does not believe the degree of improvement that exercise can achieve. Then improvement will only go so far.
Because of the problem of dyskinesia developing after five years on levodopa, he thinks newly diagnosed should pursue a program of great intensity and focus and manage their minds, so they realize they can live with PD and not require levodopa.