Comparing a Mental Illness Recovery with Parkinsons

Alice A. Holstein, Ed.D was diagnosed with bipolar mood disorder at the age of 51, which interrupted her career and produced some 12 years of intense suffering with many manic episodes, many hospitalizations, thousands of dollars spent and overall, a bleak prognosis of recovery.  She lives now, as an elder, with a full if careful life of extraordinary wellness despite still being on medication. She has a dramatic story to share about how she developed a revolutionary understanding of mental health recovery which she believes can be at least partially related to recovery with Parkinsons.

In her presentation she will explain this potential correlation by first enumerating the comparisons, such as that she too was given a bleak prognosis and told that heavy medication was required. She also understands that Parkinson’s can often produce depression in those who suffer. Her thoughts can help people specifically deal with that diagnosis. Alice believes that illness in general should be treated as a whole person approach—holistically, to include mental, emotional, physical, spiritual and social aspects. The medical profession does not proceed in this fashion. She accidentally discovered this more complete framework and has developed specific understandings that may be helpful to those dealing with Parkinsons. She also believes that recovery is partly a matter of developing one’s higher consciousness.

Her ideas and words will likely challenge, inspire and encourage the listeners on this broadcast to continue and add to the kinds of things they already are doing to improve their conditions vs. degenerate. Her example serves as a beacon of hope to living a healthier life regardless of one’s diagnosis, going beyond present practices to achieve stronger wellness and increased satisfaction.

Below are questions Alice answered during the interview:

What do you think are the major comparison’s between dealing with Parkinsons and dealing with mental illness? Why can this framework be a potentially helpful recovery correlation?

What is the essence of your dramatic recovery story and how you gained your expertise?

What are some of the specific things you did to get well?

Why is the brain so important in healing?

*Note: Alice’s website at www.aliceholstein has an article, “Heal Yourself and You Heal the Culture” which is pertinent. Go to the “site map” and look for this title. See also another title, “Things Helpers and Helpees Can Do.”

What part did going back to work at age 65 have to do with your recovery?

What role might volunteering or otherwise minimal work contribute to recovery?

What part did participating in a Spiritual Companioning Preparation program (3 years) contribute?

What do you mean by “The Hero’s Journey” and why it may be important to wellness?

What do you mean by saying that a Parkinson diagnosis and mental illness are whole person illnesses? 

What do you mean by saying that suffering can be a purifying experience?

How did you manage to survive while living periodically on the streets in your 60s?

How do you maintain your wellness?

How much do you estimate your illness cost?

What was the hardest aspect of your illness that you dealt with?

What is the largest gift you’ve received from surviving and thriving?

What are your 2 books about mental illness and will they help me deal with Parkinsons? What about the 1992 book, written under my married name, Mack? Does it possibly relate as well?

How can you be reached in the future?

Ketones as a Parkinsons Therapy

Bill Curtis developed Parkinson’s symptoms at the age of 45 in the year 2000. He  discusses his experience with using ketones and other therapies.

Ketone Ester available at: https://www.ketoneaid.com/pr

Have questions? Email Frank at: frank@ketoneaid.com

Update from Chris Hageseth MD

Robert and I have recorded interviews three times in the past:

  1. September 2016: Five years no medications. Parkinson’s improving. How I had gone for 5 years without meds and was doing well using exercise and yoga
  2. January 2017: Wholistic (or holistic) how different PWPs approach their treatment.
  3. October 2018: Shifting the Parkinson’s disease mindset.
  • This is my fourth appearance on the show today, and I still hold to my beliefs.  
  1. EXERCISE. EXERCISE, EXERCISE. I cannot exercise as hard as I did before. Gradually I had to walk more and jog less. Could only 3 – 4 miles.
  2. More convinced than ever that MINDSET/ATTITUDE is the key, PARKINSON’S IS A CHALLENGE, NOT A CURSE.  When I was formally diagnosed, I was 70 years old. Life expectancy for me was 84.1. Well, now I’m 82.4. In a year and a half, I will have reached my life expectancy.
  3. YOGA remains critical.
  4. WAIT UNTIL you really must take Levodopa. Levodopa induced dyskinesia (LID) is a real deal and can be disabling. Google it on YouTube. 
  • Let’s look at my life since we last met, year by year.

2018 – I shot a video titled So High So Low for the “I HAD A DREAM PROJECT” where I hiked a three mile walk trail and climbed a thousand feet. 

Link: https://www.ihadadreamproject.com/i-had-a-dream-project-videos 

That year I also went to Uganda to demonstrate the practices I used to manage so long without meds. (Robert, this is quite a tale, plus I have pictures.)

  • 2019 – After directing the local Parkinson’s support group, I resigned so new blood could take over.

BUT: New symptoms emerged that I didn’t know about:

  1. Anomia: a language specific disturbance arising after brain damage whose main symptom is the inability of retrieving known words. But it’s not dementia!
  2. Pseudo Bulbar Affect Crying or laughing excessively upon feeling any deep feeling.
  3. Dysphagia: difficulty or discomfort in swallowing as a symptom of disease. It starts out with mucus as postnasal drip. Get to an OT!
  4. Oily, flakey skin
  5. Sleep disturbances. Fall into deep sleep in the middle of the day. And then don’t sleep well at night.
  6. Pain in bed at night. Interfered with sleep.
  • 2020 – It was a remarkable and horrific year. PANDEMIC!

No more yoga classes! No gym with weightlifting. Social interaction approached zero. 

  • 2021 – Then, a condition worse than Parkinson’s emerged: Major Depression.

March 2021 – Fell and shattered right knee – 16 days in hospital.

July 2021 – Fell and broke my right hip.

August – Severe depression, I became suicidal.

September – Chose to have a course of electro-convulsive therapy (ECT)

October- It worked, and my PD improved a lot.

The falls were due to the antidepressant I was taking may increase fall for people with Parkinsons.

LESSON: Make sure you MD goes through all meds in case a med might make falling more likely

My story with Depression

Family history is strong.

Parkinson’s did not cause my suicidal depression, genetics and environment did.  Antidepressant medication failed to work and led to my falls!

2022 – I returned to my new normal. And that’s where I am today. I just have more symptoms and feel weaker.

I followed up with PWPs who I have advised in the past.

It became clear to me: I want to coach people with PD. 

I HAVE A LOT TO OFFER!

Teach PWPs how to become a “Bad Ass with PD.” 

No more withdrawal and depression.

My PD website: www.makemostofpd.com  

Robert, I want to come back with a program I have just developed to make being a person with PD and their caregiver have a better relationship. 

New website www.the-kindness-dialogue.com 

Robert Rodgers PhD

Research on the Gut-Brain Connection with Parkinson’s

Martha Carlin brings us up to date on the latest Parkinson’s Microbiome findings and research and help connect the dots to our environment and increasingly processed and toxic food systems with idea on how to build a healthy microbiome to improve the symptoms of Parkinson’s.  She will discuss environmental toxins, diet/nutrition, stress management and exercise as ways to impact the course of your disease and how to build your own health timeline to understand what may be impacting the course of your illness and how to change the trajectory.

Probiotics website: https://biotiquest.com

Martha Carlin’s My Parkinson’s blog https://www.marthasquest.com

Ketones as Therapy for Parkinson’s

Bill Curtis developed Parkinson’s symptoms at the age of 45 in the year 2000. He  discusses his experience with using ketones and other therapies.

Ketone Ester available at: https://www.ketoneaid.com/pr

Have questions? Email Frank at: frank@ketonaid.com

 

Life Extension Therapies: Improving the Quality of Life & Health of PD Patients

Topics that Natural Pharmacist Ross Pelton discusses include:

Parkinson’s Regeneration Training

Karl Sterling is a neuro-rehabilitation specialist and NASM Master Trainer based in Syracuse, New York, and is the creator of the Parkinson’s Regeneration Training ® and NeuroMotor Training ® education programs.

While his extensive experience as a rehabilitation specialist includes working with a variety of populations, he primarily specializes in working with clients who have movement disorders such as Parkinson’s disease, MSA (Multiple System Atrophy), MS, Charcot-Marie-Tooth, Alzheimer’s, Epilepsy, Autism, and more.

Karl travels extensively around the world as public speaker, keynote speaker, and educator in the movement disorder, human movement, and personal growth arenas. He is the Chief Operating Officer of Agile Human Performance, Inc. and owner/CEO of NeuroMotor Training LLC, which currently offer courses worldwide.

In his second book, “Parkinson’s Empowerment Training” author Karl Sterling goes deep into exploring many areas that will help the person with PD to manage symptoms and improve quality of movement, cognition, memory, and life. Topics include:

  • the power of hope, empowerment, and belief
  • how to maximize neuroplasticity
  • sleep management
  • benefits of using Power Plate and whole body vibration
  • learn about the many roles of dopamine
  • improve memory and cognition
  • “Nutrition in Parkinson’s Disease” written by dietitian, Cynthia Lopez

www.karlsterling.com

Lessons Learned from Hiking the Appalachian Trail

Questions Mountain Sage Addressed:

* Is recovery primarily mental or does “getting out of your mind” help?

* How does “You do not think till you pull the trigger” apply to recovery?

* Why are people who experience Parkinson’s symptoms always so active?

* How do you react in public when tremors flare?

* Is sleep important?

* How to you get into the deep sleep that promotes recovery?

* How has V2VG (Vet to Vet Group) helped you out?

* Does helping others help you when you yourself need help?

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

Learning How to Move Better with Parkinson’s

Michelle Turner Created Movement Lesson™ LLC, a unique therapy method that utilizes a combination of gentle touch through rotational and purposeful movement within the principles of oppositional gravity through counterbalance and rotation to create an individualized and profoundly effective therapy session.

What are the 3 main concerns to be active with Parkinsons. Michelle explains how you can improve your bodys key stabilizers

1. Balance Walking better – Benefits of Pole Walking – Maintaining an active lifestyle

2. Sleep Learning how to lie down Exercises I can do for relaxing my body

3. Speech/Vision Working the room. How vision will improve every movement in my body. Exercises to improve speech and vision. Exercises to improve breathing with rotation

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery

Unshackling the Chains of Fear Part II

Fred Phillips is an author and former martial arts instructor. He was diagnosed with Parkinson’s disease in 2008. He is my guest on Parkinsons Recovery Radio to discuss his journey with this challenging health condition, his philosophy and approach to recovery, and his recovery protocol. Fred was originally a guest on Parkinsons Recovery Radio several years ago.

Fred blogs about his experience and can be found at: fredphillips.wordpress.com. He lives on Manitoulin Island in Ontario, Canada.

Here are the questions Fred answers.

1. For those who may not be familiar with your story could you provide an overview of your experience with Parkinson’s

2. What caused you to develop Parkinson’s?

3. What has happened since we last spoke?

4. Has your philosophy or approach changed

5. What has been your experience with medication?

6. What does your overall protocol and daily regimen look like?

7. What advice would you offer others experiencing Parkinson’s?

8. Have you published any new books since we last spoke?

Natural Therapies for Parkinsons: https://www.parkinsonsrecovery.org

Robert Rodgers PhD
Founder 2004
Parkinsons Recovery